The Bubble Chronicles: Giggles, Rage, and Reruns — Fierce Truths from a Caregiver
Dazey’s Diary — Love Ya, Mean It
The Bubble Chronicles: Giggles, Rage, and Reruns — Fierce Truths from a Caregiver
Prologue
Caregiving in the 2020s isn’t a “journey.” It’s a full‑body contact sport.
Families are side‑eyeing each other over who “meant well,” social feeds are vomiting pastel‑colored platitudes, and somewhere in the middle is you — juggling meds, paperwork, and a life that quietly detonated while everyone else was busy posting about “self‑care.”
This space is not pretty. This is where the glitter rinses off, and the receipts come out.
No preachy vibes here. No pretty brochure. Just blunt truths, cool detachment from the noise, and a brick‑wall caregiver who finally retired from auditioning for anyone’s approval.
Welcome to Dazey’s Diary Blog and upcoming book.
Love ya, mean it. ~Dazey
Chapter Six Draft for preview
– Parenting the Parent (and Why Everyone Loses Their Minds About It)
Dear Dazey — and the “you’re unhinged, but I still trust you to do it alone” crowd…
You saw the fire, clocked the fallout, and chose the brick wall anyway — then ducked out when it got too hard to watch or too entitled to follow the rules.
If that checklist felt strict, good.
Now let’s talk about what it looks like in real life — the thing everyone whispers about but refuses to name out loud:
Parenting the parent.
People hate that phrase. They hear it as disrespect. As a power grab. As if I woke up one day and thought, You know what sounds fun? Telling my own parent what to do.
There is nothing fun about any of this.
Parenting the parent is not about treating her like a child. It’s about treating her brain like what it is now: fragile, overwhelmed, and no longer able to hold the weight everyone keeps shoving onto it.
If You’d Respect It for a Toddler, Why Not for Her?
Here’s the hill I’ll die on:
If you wouldn’t question a mom for setting bedtimes, screen limits, and “don’t hype them up before bed” rules for a toddler, why on earth do you question a caregiver doing the same thing for a parent in memory care?
You wouldn’t:
call a five‑year‑old at two a.m. to “check in,”
pop into their room unannounced and wind them up ten minutes before nap time,
dump fifty years of adult drama on a kindergartner because you “just needed to vent.”
But tell people they can’t do those things to a seventy‑something with Alzheimer’s, and suddenly I’m:
“too harsh,”
“treating her like a child,”
“on a power trip.”
Newsflash: the brain doesn’t care what year you were born. If your short‑term memory is fried and your nervous system is hanging on by a thread, you need structure.
If setting that structure for a child counts as “good parenting,” then setting it for her isn’t unhinged control. It’s the same job — with higher stakes.
The Two Brains I Have to Protect
When I parent the parent, I’m not just protecting one brain. I’m protecting two.
Hers — the one that’s losing pieces of itself and filling the gaps with fear, stories, and whatever the last person said.
Mine — the one that has to stay functional enough to handle meds, appointments, paperwork, midnight Loops, and every unexpected phone call.
People act like I should run my own nervous system into the ground in the name of “respect.”
Respect, apparently, means:
never saying no,
never correcting a dangerous decision,
never limiting access to people who leave her nerves at DEFCON 2.
I tried that. It didn’t end in dignity. It ended in ER visits, panic attacks, and a woman who couldn’t tell where her life stopped and other people’s drama began.
Parenting the parent is not about shrinking her. It’s about shrinking the chaos around her so she has something solid to stand on.
The Part That Makes Everyone Uncomfortable:
Here’s the real reason people melt down when you start parenting the parent:
It forces them to look at their own behavior.
Once you admit her brain needs:
a bedtime,
a stimulus limit,
a vetted guest list,
you also have to admit that you might not be good for her right now.
That’s the part they can’t tolerate.
So instead of asking, “How can I be safer for her?” they ask, “Who do you think you are?” They attack the wall instead of the storm. They’d rather accuse me of being controlling than admit their impulsive late‑night calls are triggering panic. They’d rather label me “unhinged” than acknowledge that every surprise visit buys them a cute photo and buys her three days of confusion.
Parenting the parent holds up a mirror. Some people would rather crack the mirror than change their reflection.
The Parenting Math I Live By
I had to build myself a new math for this season — something to replace the old obedience drills and good‑girl expectations.
Here’s what the parenting‑the‑parent math looks like now:
If it protects her safety, it’s on the table.
Car keys, finances, who has access to her — nothing is sacred if it’s hurting her.If it preserves her dignity, it’s worth the discomfort.
That includes saying no to people who want to turn her decline into their redemption arc.If it wrecks her for days so someone else can feel better for ten minutes, it’s a no.
I don’t care who they are, what they did in the past, or how much they cry.If it costs me my sanity, it costs her her caregiver.
If a decision burns me out, she loses the one person still willing to stand in the fire with her.
I run every request through that math now. If the numbers don’t work, the answer is no. Not because I’m heartless. Because I’m done sacrificing two nervous systems to keep everyone else comfortable.
The Grief Nobody Warns You About
Parenting the parent comes with a grief nobody writes sympathy cards for.
You’re grieving the mom (or insert your role here) who:
made her own decisions,
handled her own business,
didn’t need your protection.
You’re also grieving the version of you who:
got to just be the daughter/son/niece/friend,
didn’t have to think about med windows and visiting hours,
didn’t have to be the bad guy in group chats.
The first time you say, “No, you cannot call her at midnight,” or “No, you don’t get to discuss the will with her alone,” you feel like you’re betraying everybody: her, them, and the story you grew up with.
You’re not. You’re betraying the disease. You’re betraying the chaos. You’re betraying the version of the story where she keeps paying the bill for everyone else’s comfort.
If that requires me to look like the villain in someone else’s narrative, I’ll buy myself the cape.
When Parenting the Parent Looks Like Love
Here’s what parenting the parent actually looks like on a Tuesday, not in a dramatic Facebook post:
Saying, “No, you can’t visit today — she’s already maxed out,” and sitting with your guilt instead of handing it to her.
Taking her phone for the night, not because you’re cruel, but because you’ve seen what two a.m. texts do to her heart rate.
Telling the nurse, “If that person calls, please route them through me. She can’t process their drama anymore.”
Skipping the argument about whether it was 1974 or 1978 and just saying, “You’re right, that was a big year,” because accuracy isn’t worth the meltdown.
Letting her wear the same shirt two days in a row, but not letting her skip meds — even when she glares.
None of that feels glamorous. It feels like a hundred tiny, unphotogenic decisions that leave her calmer at the end of the day than she was at the start.
That’s love.
Not the Hallmark kind.
The brick~ fucking ~wall kind.
For the Ones Screaming “You’re Treating Her Like a Child”
To the ones who throw that line at me like it’s a knockout punch: you’re late.
The doctors already told us her executive function is shot. The therapists already told us she can’t track complex decisions alone. The nurses already told us, quietly, in break rooms and parking lots, that the families who refuse structure are the ones whose loved ones suffer most.
I am not downgrading her.
I am upgrading the protection around her.
If that looks like parenting to you, that says more about your relationship with limits than it does about mine.
So yes, I parent the parent. I set bedtimes for her phone and curfews for other people’s chaos. I say no like a grown‑up, even when the room is full of adults who never learned how.
You can call that controlling if you want.
I call it caregiving.
Since everyone seems so offended by the rules, let’s translate them — line by line — into what they actually mean for her brain, her body, and my ability to keep showing up.
Because under every “no calls after eight p.m.” and “no surprise visits” is one simple sentence:
I am parenting the parent so the disease doesn’t.
Now let’s talk about what each rule really protects.
Rules, Translated: What They Actually Protect
Since everyone is so offended by the idea of rules, let’s stop pretending they’re abstract and talk about what they actually do.
Every “controlling” rule has a job. Here’s what each one really protects.
Rule 1: No Calls After 8 p.m.
The rule:
No calls after eight p.m. Unless it’s 911‑level, it can wait. Sleep is medicine.
What people think it means:
“You’re policing our relationship.”
What it actually means:
Her nervous system gets to stand down for the night.
After eight p.m., her brain is already working overtime:
sundowning kicks up the static,
every random call feels like danger,
one “We need to talk” at 10:47 p.m. can buy us three days of panic.
“No calls after eight p.m.” doesn’t mean you don’t matter. It means her heart rate, blood pressure, and sleep cycles matter more than your late‑night guilt dump.
You want access? Great. Call during the hours when her brain has a fighting chance.
Rule 2: No Surprise Visits
The rule:
No surprise visits. You don’t ambush a fragile brain for your nostalgic, chaotic road trip.
What people think it means:
“You’re turning this into a prison.”
What it actually means:
We’re not using her as a prop in your spontaneity reel.
Her brain needs:
time to process “someone is coming,”
time to get dressed and oriented,
a clear beginning and end to the social demand.
Surprise visits might feel fun to you.
To her, it’s strangers in a hallway she barely recognizes, demanding instant emotional performance.
“No surprise visits” doesn’t mean no visits. It means we respect her need for predictability more than your need for a cute “we just dropped by!” story.
Rule 3: No Visits Without a Plan
The rule:
No visits without a plan: who’s coming, when, for how long, and what topics are off‑limits.
What people think it means:
“You’re micromanaging every conversation.”
What it actually means:
We’re not freelancing with her nervous system.
A visit without a plan always turns into:
wandering conversations,
landmine topics,
interrogations about money, wills, or “what really happened with…”.
Her brain can’t track open‑ended social chaos. Having a plan doesn’t make the visit fake. It makes it survivable.
We’re not scripting your every word. We’re choosing guardrails so she doesn’t spend three nights reliving your “spontaneous honesty.”
Rule 4: No Heavy Conversations With Her Alone
The rule:
No heavy conversations with her alone. Money, wills, “what she really wants” — all go through a professional or me.
What people think it means:
“You don’t trust us.”
What it actually means:
We’re not handing a diseased brain a legal and emotional grenade with no witness.
When you corner her with:
“What do you really want to happen with the house?”,
“You always said I’d get…”,
“Don’t you want to make sure I’m taken care of?”,
you’re asking a woman who can’t remember breakfast to make decisions that could blow up the rest of her life.
“No heavy conversations alone” doesn’t mean she doesn’t have a voice. It means her voice gets protected — documented, witnessed, and supported by people whose job is to hold the whole picture, not just their inheritance storyline.
Rule 5: No Side‑Door Sneaking
The rule:
No side‑door sneaking. If you try to go around me to get what you want from her, your access shrinks — quickly.
What people think it means:
“You’re trying to control everyone.”
What it actually means:
We’re not reenacting every betrayal she ever survived.
Side‑door sneaking looks like:
calling staff for end‑runs around the care plan,
slipping her secret notes — “Call me anytime, don’t tell Dazey,”
feeding her stories that contradict what the doctor just told us.
Every side door reopens old wounds:
hiding things,
divided loyalty,
fear of “getting in trouble.”
“No side‑door sneaking” doesn’t mean you’re exiled. It means if you want access, you use actual doors — the ones that keep her safe.
Go around me, and you go through me less.
Rule 6: No Emotional Drive‑Bys
The rule (often unspoken):
No dumping, no “just being honest,” no late‑breaking confessions she can’t process.
What people think it means:
“You’re policing what we’re allowed to feel.”
What it actually means:
Your unprocessed guilt doesn’t get to live in her body.
When you:
call to “clear the air” at eleven p.m.,
cry about how hard this is for you and then hang up,
confess all the ways you “failed her” and leave her shaking,
you feel better.
She pays the bill.
“No emotional drive‑bys” doesn’t mean you don’t get to have feelings. It means your feelings belong in therapy, journaling, or with someone whose brain isn’t actively falling apart.
Rule 7: Access Is a Privilege, Not a Birthright
The rule:
If you question my rules, you don’t get access.
What people think it means:
“You’re cutting us off.”
What it actually means:
Being related to her doesn’t override the care plan.
Access is earned by:
believing the fallout exists,
following the damn rules,
putting her impact over your access,
bringing help instead of chaos.
If you can’t do those things, you’re not being punished. You’re being benched.
You can love her and still not be safe for her right now. Love is not measured in how often you blow up her phone. It’s measured in how willing you are to change your behavior to protect her mind.
The Short Version
Every rule people hate has the same translation: Her safety and sanity matter more than your convenience and image. If that feels like an attack, look closer at which part stings.
Because I’m done apologizing for the wall.
The rules stay.
The Bubble stays.
She stays as calm as this disease allows.
And the ones who can live with that? Those are the ones who get to come inside.
Love ya, mean it. — Dazey, keeper of the brick‑fucking‑wall

